Sienna and Sierra, A Tale of Twin Sisters with Unique Journeys
110 views
Oct 14, 2024
Explore the touching story of Sienna and Sierra, twin sisters whose lives diverged due to Sienna's health challenges and dwarfism.
View Transcript
0:00
Sometimes when we go out of the public, people
would think she's my mom and not my twin
0:12
When we go to bars, people think
I'm eight, even though I'm 23
0:16
First off, I didn't even though I
didn't even though I didn't even
0:25
even realized that I was having twins
until about six weeks before they were born
0:29
They said, well, you're having twins, but you
need to quickly get over that because we need
0:34
to talk about Baby B. I knew that she had Dandy
Walker in utero so they could see that she
0:40
was missing a portion of her brain, and then they
could see that she was a lot smaller as well
0:46
Sienna stayed in the NICU for 108 days, and
then she went into the hospital a lot over the
0:54
the next several years of her
life. It was a long fight to
0:58
find out what kind of dwarfism she had
or that she had dwarfism in general
1:02
She did have a hole in her heart and they
thought perhaps that was why she was so small
1:07
And then they gave her a feeding tube in her stomach
because they thought maybe she wasn't eating enough
1:11
And so it wasn't until she was
about six, right? Six or seven, yeah
1:17
That we discovered that she had dwarfism. It was more or less like a relief because now that
we know what it is we know what we need to do in order to better her life Sienna is a spitfire
1:32
Yeah, I always say I'm like a side though,
a chihuahua, or a person I like a wottweiler
1:38
For me, the emotional side of things was
a little challenging because Sienna would
1:46
having an identical twin who is, you know,
average, high, she would see what she was missing
1:54
So she could see what her life would have
been like because she would say, you know
1:58
why is Sierra getting to live the life I want to live? It's affected
our relationship in the sense that we have to be very communicative
2:16
and we have to be very, really
we can't be jealous of anything
2:21
because we do have very different lives.
And we have different experiences
2:28
Yeah, very different experiences. We're on a different
road path. It's neat, you know, from a dad's standpoint
2:34
to see that they are twins and that
they have such a tight relationship
2:40
And yet they are still really so
different not just because of their height
2:51
Thank you
#Genetic Disorders
# Other
# Pediatrics
# People & Society
# Troubled Relationships